When Everett received his helmet, we were given a list of strict instructions. One of which was that he needed to wear it 23 hours a day. The one-hour reprieve was reserved for bath time and cleaning the helmet. Basically, one hour to scrub the stench out.
On occasion, kids need a second helmet. The explanation from one of the technicians was parents tend to get “sloppy” about having their child wear it 23 hours a day, leaving extra time for their head to grow outside the perimeters of the helmet.
Insurance covered Everett’s helmet the first time – hallelujah! – and we didn’t want to take our chances a second time. So, we were a smidge obsessive compulsive about him wearing it.
Despite no sleep the first two and a half weeks in it, he still wore it. With the fussiness and discomfort, he wore it. When we spent a week at the beach, we made that hour off work as best we could, and he wore it. Even though that helmet made his head smell like a high school locker room, he wore it.
Most days, Everett doesn’t even have it off for the full hour. We were going all in, and we wanted it to work.
And, it has. His head looks phenomenal compared to what it was eight weeks ago. It definitely looks less alien and more Gerber baby. The initial plan was for him to wear it for four plus months. At his appointment on Monday, we were told he has three weeks.
Before you release the confetti and balloons in celebration, she didn’t mean his treatment was over in three weeks. He will have outgrown his helmet in three weeks. We found this out the same day I received Everett’s adorable watermelon costume for Halloween in the mail. We may have to rethink that one.
On a rare occasion, kids need a second helmet because their heads grow faster than expected, even when there is extreme diligence in wearing it. Not completely surprising since both my boys are in the lower percentiles for weight and height, but take the top percentiles for their head size. Big heads… Wonder who they get that from…
Insurance is not quite so kind this time around, as we basically maxed out our allowance in the helmet previously. Now, we are left with a decision to make, Round two or call it quits. And, we also have to question whether a second helmet will make a substantial difference in the treatable time he has left. I could really use a crystal ball right about now.
Little boy, I’m afraid you may have spent your entire college tuition this first year of life 😉
One thought on “seeing double”
Its terrible how expensive these medical needs are. Best of luck and maybe college fund will be replenished by then lol 🙂